MS among African Americans

Over the past 10 years, a growing body of research has drawn attention to MS in the Black community. A 2013 study suggested that the risk for MS is highest in Black women. Other studies have looked at some of the differences in Black patients compared with White patients.

Black people may be more likely to experience more severe symptoms of MS.

One study of people with MS in the US showed that Black people were 61% more likely to have physical symptoms from the start of their disease compared with White people. Other evidence suggests that Black people can have more severe symptoms, including:

• Relapses and poorer recovery
• Cognitive deficits
• Vision problems
• Difficulty walking
• Balance and coordination problems
• Earlier onset of disability

Taking part in research is important. Participation in MS research by minorities is very low. In some cases, it’s less than 1%. This may be due to lack of access to places that carry out research, fear of being used as a “guinea pig,” or a lack of trust in the healthcare system. Some analysis suggests Black people may be less responsive to MS treatments, but it’s hard to say based on the small number of people taking part. Greater participation in clinical trials could help us find out how well a specific treatment worked across different minorities.

MS in the Black community is something that isn’t talked about enough. Finding ways to overcome barriers is critical for managing your MS, whether it’s related to income, insurance, or fear of discrimination. It’s important to build a support team that you can trust and rely on. Finding the right healthcare team may help you feel more comfortable having open conversations and getting the support you’re looking for.